- Title
- Education versus screening
- Creator
- Kong, Camillia, Efrem, Mehret, Campbell, Megan M
- Subject
- To be catalogued
- Date
- 2020
- Type
- text
- Type
- article
- Identifier
- http://hdl.handle.net/10962/302461
- Identifier
- vital:58198
- Identifier
- xlink:href="http:// 10.1136/medethics-2019-105396"
- Description
- Informed consent procedures for participation in psychiatric genomics research among individuals with mental disorder and intellectual disability can often be unclear, particularly because the underlying ethos guiding consent tools reflects a core ethical tension between safeguarding and inclusion. This tension reflects important debates around the function of consent tools, as well as the contested legitimacy of decision-making capacity thresholds to screen potentially vulnerable participants. Drawing on human rights, person-centred psychiatry and supported decisionmaking, this paper problematises the use of consent procedures as screening tools in psychiatric genomics studies, particularly as increasing normative emphasis has shifted towards the empowerment and participation of those with mental disorder and intellectual disabilities. We expound on core aspects of supported decisionmaking, such as relational autonomy and hermeneutic competence, to orient consent procedures towards a more educative, participatory framework that is better aligned with developments in disability studies. The paper concludes with an acknowledgement of the pragmatic and substantive challenges in adopting this framework in psychiatric genomics studies if this participatory ethos towards persons with mental disorder and intellectual disability is to be fully realised.
- Format
- computer, online resource, application/pdf, 1 online resource (7 pages), pdf
- Publisher
- Taylor and Francis Online
- Language
- English
- Relation
- Journal of Medical Ethics, Kong, C., Efrem, M. and Campbell, M., 2020. Education versus screening: the use of capacity to consent tools in psychiatric genomics. Journal of Medical Ethics, 46(2), pp.137-143, Journal of Medical Ethics volume 46 number 2 p. 137 2020 2373-700X
- Rights
- Publisher
- Rights
- Open Access
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Collections
Campbell, Megan M (Prof)
RU Department of Psychology
SDG 03. Good Health and Well-Being
| Thumbnail | File | Description | Size | Format | |||
|---|---|---|---|---|---|---|---|
| View Details Download | SOURCE1 | Education versus screening.pdf | 221 KB | Adobe Acrobat PDF | View Details Download |