- Title
- Prioritising African perspectives in psychiatric genomics research
- Creator
- Kamaara, Eunice, Kong, Camillia, Campbell, Megan
- Subject
- To be catalogued
- Date
- 2020
- Type
- text
- Type
- article
- Identifier
- http://hdl.handle.net/10962/302520
- Identifier
- vital:58204
- Identifier
- xlink:href="https://doi.org/10.1111/dewb.12248"
- Description
- Psychiatric genomics research with African populations comes with a range of practical challenges around translation of psychiatric genomics research concepts, procedures, and nosology. These challenges raise deep ethical issues particularly around legitimacy of informed consent, a core foundation of research ethics. Through aconsideration of the constitutive function of language, the paper problematises like‐for‐like, designative translations which often involve the ‘indigenization’ of English terms or use of metaphors which misrepresent the risks and benefits of research. This paper argues that effective translation of psychiatric genomics research terminology in African contexts demands substantive engagement with African conceptual schemas and values. In developing attenuated forms of translational thinking, researchers may recognise the deeper motivational reasons behind participation in research, highlighting the possibility that such reasons may depart from the original meaning implied within informed consent forms. These translational issues might be ameliorated with a critical re-examination of how researchers develop and present protocols to institutional ethics review boards.
- Format
- computer, online resource, application/pdf, 1 online resource (11 pages), pdf
- Publisher
- Wiley Online Library
- Language
- English
- Relation
- Developing World Bioethics, Kamaara, E., Kong, C. and Campbell, M., 2020. Prioritising African perspectives in psychiatric genomics research: Issues of translation and informed consent. Developing World Bioethics, 20(3), pp.139-149, Developing World Bioethics volume 20 number 3 p. 139 2020 1471-8847
- Rights
- Publisher
- Rights
- Use of this resource is governed by the terms and conditions of the Wiley Library Online Terms of Use Statement (https://onlinelibrary.wiley.com/terms-and-conditions)
- Rights
- Open Access
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Collections
Campbell, Megan M (Prof)
RU Department of Psychology
SDG 05. Gender Equality
SDG 03. Good Health and Well-Being
SDG 10. Reduced Inequalities
| Thumbnail | File | Description | Size | Format | |||
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| View Details | SOURCE1 | Prioritising African perspectives in psychiatric genomics research.pdf | 487 KB | Adobe Acrobat PDF | View Details |