Health literacy test for limited literacy populations (HELT-LL): validation in South Africa
- Marimwe, Chipiwa, Dowse, Roslind
- Authors: Marimwe, Chipiwa , Dowse, Roslind
- Date: 2019
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156652 , vital:40035 , https://doi.org/10.1080/2331205X.2019.1650417
- Description: The majority of health literacy measures emanate from high-income countries and are inappropriate for use in limited literacy individuals who are usually excluded from participation in health literacy studies. There is currently no appropriate health literacy measure for the educationally diverse South African population. This study, which reports the validation of the Health Literacy Test for Limited Literacy individuals (HELT-LL), was conducted in primary health-care clinics with 210 isiXhosa-speaking patients with a maximum of 12 years of schooling. The HELT-LL has varied cognitive demands, assesses functional literacy skills as well as local burden of disease knowledge, and also includes self-reported questions.
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- Authors: Marimwe, Chipiwa , Dowse, Roslind
- Date: 2019
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156652 , vital:40035 , https://doi.org/10.1080/2331205X.2019.1650417
- Description: The majority of health literacy measures emanate from high-income countries and are inappropriate for use in limited literacy individuals who are usually excluded from participation in health literacy studies. There is currently no appropriate health literacy measure for the educationally diverse South African population. This study, which reports the validation of the Health Literacy Test for Limited Literacy individuals (HELT-LL), was conducted in primary health-care clinics with 210 isiXhosa-speaking patients with a maximum of 12 years of schooling. The HELT-LL has varied cognitive demands, assesses functional literacy skills as well as local burden of disease knowledge, and also includes self-reported questions.
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Outcome of illustrated information leaflet on correct usage of asthma-metered dose inhaler:
- Wrench, Wendy W, Van Dyk, Lynette, Srinivas, Sunitha C, Dowse, Roslind
- Authors: Wrench, Wendy W , Van Dyk, Lynette , Srinivas, Sunitha C , Dowse, Roslind
- Date: 2019
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156640 , vital:40033 , https://doi.org/10.4102/phcfm.v11i1.2079
- Description: Research globally has shown that metered dose inhaler (MDI) technique is poor, with patient education and regular demonstration critical in maintaining correct use of inhalers. Patient information containing pictorial aids improves understanding of medicine usage; however, manufacturer leaflets illustrating MDI use may not be easily understood by low-literacy asthma patients. To develop and evaluate the outcome of a tailored, simplified leaflet on correct MDI technique in asthma patients with limited literacy skills.
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- Authors: Wrench, Wendy W , Van Dyk, Lynette , Srinivas, Sunitha C , Dowse, Roslind
- Date: 2019
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156640 , vital:40033 , https://doi.org/10.4102/phcfm.v11i1.2079
- Description: Research globally has shown that metered dose inhaler (MDI) technique is poor, with patient education and regular demonstration critical in maintaining correct use of inhalers. Patient information containing pictorial aids improves understanding of medicine usage; however, manufacturer leaflets illustrating MDI use may not be easily understood by low-literacy asthma patients. To develop and evaluate the outcome of a tailored, simplified leaflet on correct MDI technique in asthma patients with limited literacy skills.
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The impact of illustrated side effect information on understanding and sustained retention of antiretroviral side effect knowledge:
- Browne, Sara H, Barford, Kirsty-Lee, Ramela, Thato, Dowse, Roslind
- Authors: Browne, Sara H , Barford, Kirsty-Lee , Ramela, Thato , Dowse, Roslind
- Date: 2019
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156341 , vital:39980 , https://doi.org/10.1016/j.sapharm.2018.05.012
- Description: Prompt management of side effects is critical to supporting adherence to antiretroviral (ARV) medication. This study examines the impact of presenting side effect information using simple text combined with pictograms on sustained knowledge of ARV side effects over three months. Previously designed side effect pictograms, combined with simple text, were incorporated into a side effects panel within an ARV information leaflet. In a randomised controlled study, 116 limited literacy HIV patients taking ARVs were randomly allocated to either control (standard care) or intervention groups (standard care plus illustrated information). Side effect knowledge was assessed at baseline, and intervention patients received the illustrated leaflet. Knowledge was re-tested at one and three months. Interpretation of side effect pictograms was evaluated at one month.
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- Authors: Browne, Sara H , Barford, Kirsty-Lee , Ramela, Thato , Dowse, Roslind
- Date: 2019
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156341 , vital:39980 , https://doi.org/10.1016/j.sapharm.2018.05.012
- Description: Prompt management of side effects is critical to supporting adherence to antiretroviral (ARV) medication. This study examines the impact of presenting side effect information using simple text combined with pictograms on sustained knowledge of ARV side effects over three months. Previously designed side effect pictograms, combined with simple text, were incorporated into a side effects panel within an ARV information leaflet. In a randomised controlled study, 116 limited literacy HIV patients taking ARVs were randomly allocated to either control (standard care) or intervention groups (standard care plus illustrated information). Side effect knowledge was assessed at baseline, and intervention patients received the illustrated leaflet. Knowledge was re-tested at one and three months. Interpretation of side effect pictograms was evaluated at one month.
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‘Yummy or crummy?': the multisensory components of medicines-taking among HIV-positive youth
- Hodes, Rebecca, Vale, Beth, Toska, Elona, Cluver, Lucie, Dowse, Roslind, Ashorn, Mikael
- Authors: Hodes, Rebecca , Vale, Beth , Toska, Elona , Cluver, Lucie , Dowse, Roslind , Ashorn, Mikael
- Date: 2019
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156663 , vital:40036 , DOI: 10.1080/17441692.2018.1504103
- Description: The global rollout of Antiretroviral Treatment (ART) has revealed an urgent need to understand the medicines-taking practices of HIV-positive adolescents. In the last decade, the literature on the social determinants of health has broadened the evidence-base on ART adherence. Interdisciplinary studies have expanded conceptions of medicines-taking beyond clinical or health systems frameworks, recognising the importance of socio-structural conditions and of patients’ beliefs and experiences. Participatory research techniques which foreground the perspectives of adolescents provide greater insights still into their adherence. This article explores the use of participatory methods within a broader study on the social determinants of ART adherence among HIV-positive adolescents in South Africa. We describe how participatory methods were incorporated into this study (n = 1,059 in the quantitative baseline). We focus on an exercise, ‘Yummy or crummy?’, that explored the multisensory dimensions of medicines-taking, including their colour, smell, shape, and delivery mechanism. We describe two principal findings: first, adolescents’ preference for greater understanding of the chemical workings of medicines, manifested in their preferences for colour, taste and shape of medicines; and second, the vital relationship between sensory preferences and the social imperatives of discretion and confidentiality regarding HIV-status.
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- Authors: Hodes, Rebecca , Vale, Beth , Toska, Elona , Cluver, Lucie , Dowse, Roslind , Ashorn, Mikael
- Date: 2019
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156663 , vital:40036 , DOI: 10.1080/17441692.2018.1504103
- Description: The global rollout of Antiretroviral Treatment (ART) has revealed an urgent need to understand the medicines-taking practices of HIV-positive adolescents. In the last decade, the literature on the social determinants of health has broadened the evidence-base on ART adherence. Interdisciplinary studies have expanded conceptions of medicines-taking beyond clinical or health systems frameworks, recognising the importance of socio-structural conditions and of patients’ beliefs and experiences. Participatory research techniques which foreground the perspectives of adolescents provide greater insights still into their adherence. This article explores the use of participatory methods within a broader study on the social determinants of ART adherence among HIV-positive adolescents in South Africa. We describe how participatory methods were incorporated into this study (n = 1,059 in the quantitative baseline). We focus on an exercise, ‘Yummy or crummy?’, that explored the multisensory dimensions of medicines-taking, including their colour, smell, shape, and delivery mechanism. We describe two principal findings: first, adolescents’ preference for greater understanding of the chemical workings of medicines, manifested in their preferences for colour, taste and shape of medicines; and second, the vital relationship between sensory preferences and the social imperatives of discretion and confidentiality regarding HIV-status.
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