A case-series evaluation of the impact and processes of a service-learning programme on and for caregivers and their children with neurodevelopmental disabilities
- Authors: Cooke, Nicole
- Date: 2019
- Subjects: Developmentally disabled children -- Care , Caregivers -- Training of , Service learning -- Case studies
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/96691 , vital:31309
- Description: This thesis presents a series of three case studies from data collected as part of a research project exploring the process and impact of a service-learning programme with caregivers and their children with neurodevelopmental disabilities. Following a descriptive case series design, both quantitative and qualitative data are presented to create a comprehensive and rich understanding of each case. In particular, the data tracks change processes in the subjective well-being of the caregiver, the quality of the caregiver-child relationship and the functional development of the child over a twenty-one-week period of receiving public health services and an eight-week period of adding the service-learning programme. The paper also presents qualitative data on the caregivers’ perceptions of and experiences of the public services and the servicelearning programme that the caregivers and their children received. The findings provide important insight into the caregivers’ perceptions of giving and receiving care, with the caregivers’ experiencing significant levels of distress and prominent barriers to accessing healthcare that were seemingly eased with the addition of the service-learning programme. The findings also point to a notable disparity between the quantitative findings and the qualitative interviews with questions being raised about the research being viewed as an intervention in itself.
- Full Text:
- Authors: Cooke, Nicole
- Date: 2019
- Subjects: Developmentally disabled children -- Care , Caregivers -- Training of , Service learning -- Case studies
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/96691 , vital:31309
- Description: This thesis presents a series of three case studies from data collected as part of a research project exploring the process and impact of a service-learning programme with caregivers and their children with neurodevelopmental disabilities. Following a descriptive case series design, both quantitative and qualitative data are presented to create a comprehensive and rich understanding of each case. In particular, the data tracks change processes in the subjective well-being of the caregiver, the quality of the caregiver-child relationship and the functional development of the child over a twenty-one-week period of receiving public health services and an eight-week period of adding the service-learning programme. The paper also presents qualitative data on the caregivers’ perceptions of and experiences of the public services and the servicelearning programme that the caregivers and their children received. The findings provide important insight into the caregivers’ perceptions of giving and receiving care, with the caregivers’ experiencing significant levels of distress and prominent barriers to accessing healthcare that were seemingly eased with the addition of the service-learning programme. The findings also point to a notable disparity between the quantitative findings and the qualitative interviews with questions being raised about the research being viewed as an intervention in itself.
- Full Text:
The experiences of health service providers working with children with physical disabilities and their caregivers in the Eastern Cape
- Authors: Mathaba, Yollandah
- Date: 2019
- Subjects: Children with disabilities -- South Africa -- Eastern Cape , Caregivers -- South Africa -- Eastern Cape -- Case studies , Caregivers -- Psychology , Children with disabilities -- Care
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/76299 , vital:30545
- Description: The prevalence of childhood disability in South Africa is significant. In an attempt to meet the constitutional rights of children with disabilities, there are a variety of services available for children with disabilities. These services are aimed at rehabilitating children with disabilities and integrating them in society. Amongst such services are health services. Due to the nature of some childhood disabilities, it is recommended that they should be seen by a multidisciplinary team. While the field of childhood disability has been researched extensively. Limited research has been conducted on the experiences of health service providers working with children with disabilities and their caregivers. The current study explored the experiences of health service providers working with children with disabilities and their caregivers in the Eastern Cape. To achieve this aim, the study employed Interpretative Phenomenological Analysis (IPA). Five participants were recruited using purposive and snowball sampling methods. Semi-structured interviews were used to allow participants to freely share their experiences of working with children with disabilities and their caregivers. The interviews were audio recorded and transcribed for analysis purpose. The analysis process generated five master themes namely: Positive experiences of their work; negative experiences of their work; perception of their role as changing over time; managing challenges in their work; and experiences of a service learning programme as complementary to their work. The findings of the study highlighted both the positive experiences and the negative experiences of their work. On the one hand, the participants reported positive affect and that they found their work meaningful. They also reported a sense of feeling supported by fellow colleagues and enjoying their work at the clinics. On the other hand, the participants reported negative affect in relation to their wok difficulties such as feelings of frustration, feelings of being unappreciated by management and finding the work distressing. The participants reported that professional and emotional growth in conjunction with perspective taking contributed to developing better coping mechanisms. A service learning programme offered in the community was experienced as a good contribution to the work done at the clinics and distinguished as addressing the emotional needs of the caregivers which cannot be addressed at the clinics. The findings of the study supports and expands the literature on the experiences of health service providers working with children with disabilities in South Africa.
- Full Text:
- Authors: Mathaba, Yollandah
- Date: 2019
- Subjects: Children with disabilities -- South Africa -- Eastern Cape , Caregivers -- South Africa -- Eastern Cape -- Case studies , Caregivers -- Psychology , Children with disabilities -- Care
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/76299 , vital:30545
- Description: The prevalence of childhood disability in South Africa is significant. In an attempt to meet the constitutional rights of children with disabilities, there are a variety of services available for children with disabilities. These services are aimed at rehabilitating children with disabilities and integrating them in society. Amongst such services are health services. Due to the nature of some childhood disabilities, it is recommended that they should be seen by a multidisciplinary team. While the field of childhood disability has been researched extensively. Limited research has been conducted on the experiences of health service providers working with children with disabilities and their caregivers. The current study explored the experiences of health service providers working with children with disabilities and their caregivers in the Eastern Cape. To achieve this aim, the study employed Interpretative Phenomenological Analysis (IPA). Five participants were recruited using purposive and snowball sampling methods. Semi-structured interviews were used to allow participants to freely share their experiences of working with children with disabilities and their caregivers. The interviews were audio recorded and transcribed for analysis purpose. The analysis process generated five master themes namely: Positive experiences of their work; negative experiences of their work; perception of their role as changing over time; managing challenges in their work; and experiences of a service learning programme as complementary to their work. The findings of the study highlighted both the positive experiences and the negative experiences of their work. On the one hand, the participants reported positive affect and that they found their work meaningful. They also reported a sense of feeling supported by fellow colleagues and enjoying their work at the clinics. On the other hand, the participants reported negative affect in relation to their wok difficulties such as feelings of frustration, feelings of being unappreciated by management and finding the work distressing. The participants reported that professional and emotional growth in conjunction with perspective taking contributed to developing better coping mechanisms. A service learning programme offered in the community was experienced as a good contribution to the work done at the clinics and distinguished as addressing the emotional needs of the caregivers which cannot be addressed at the clinics. The findings of the study supports and expands the literature on the experiences of health service providers working with children with disabilities in South Africa.
- Full Text:
“Like walking barefoot on the gravel road”: the experience of caring for a child with physical disabilities
- Authors: Ndlovu, Nokanyo
- Date: 2019
- Subjects: PhotoVoice , Photography in the social sciences , Action research , Children with disabilites -- Care -- South Africa , Children with disabilites -- Care -- South Africa -- Case studies , Caregivers -- South Africa -- Case studies , Caregivers -- South Africa
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/72479 , vital:30057
- Description: The aim of this study was to develop an understanding of the experiences of caregivers of children with physical disabilities and to explore ways of improving this experience. Although there is a considerable amount of international research on the experiences of caring for children with disabilities, the focus of the methods of enquiry has mainly been on knowledge production and there is limited research conducted using an approach like participatory action research. Secondly, in South Africa, there is still inadequate information regarding the experiences of caregivers who are from low socio-economic backgrounds. It is for these reasons that the current study, which employed PhotoVoice, a participatory research data collection tool, to explore the lived experiences of caregivers of children with physical disabilities from low socio-economic backgrounds was embarked upon. The research methodology comprised two main parts: firstly, a study of relevant literature on the subject matter, in order to gain in-depth understanding of the field; and secondly, qualitative data collection, using PhotoVoice. A sample of six participants between the ages of 22-57 years was selected through purposive and convenience sampling. Cameras were distributed to participants and after processing of images narratives were shared around selected photographs and this was later followed by focused group discussions. This analysis process provided two master themes, which are supported by subordinate themes. The master themes are: 1) The challenges associated with the caregiving experience, 2) The positive side of the caregiving experience. Participants experienced a lack of resources, challenges of mobility, the hopelessness of the situation, loneliness of the experience and the financial burden of caring for a child with physical disabilities as challenges associated with the caregiving role. Whereas the joy brought about by support from family, the health service providers and the Association for People with Physical Disabilities personnel; precious moments shared with the child; and personal growth were associated with the positive side of the caregiving experience. These findings support and expand on the growing knowledge of caring for children with physical disabilities. This research culminated in a sharing of the narratives with stakeholders by caregivers themselves as a way of seeking to influence policy, enhance their well-being and engage in a discussion of exploring ways of improving their experience.
- Full Text:
- Authors: Ndlovu, Nokanyo
- Date: 2019
- Subjects: PhotoVoice , Photography in the social sciences , Action research , Children with disabilites -- Care -- South Africa , Children with disabilites -- Care -- South Africa -- Case studies , Caregivers -- South Africa -- Case studies , Caregivers -- South Africa
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/72479 , vital:30057
- Description: The aim of this study was to develop an understanding of the experiences of caregivers of children with physical disabilities and to explore ways of improving this experience. Although there is a considerable amount of international research on the experiences of caring for children with disabilities, the focus of the methods of enquiry has mainly been on knowledge production and there is limited research conducted using an approach like participatory action research. Secondly, in South Africa, there is still inadequate information regarding the experiences of caregivers who are from low socio-economic backgrounds. It is for these reasons that the current study, which employed PhotoVoice, a participatory research data collection tool, to explore the lived experiences of caregivers of children with physical disabilities from low socio-economic backgrounds was embarked upon. The research methodology comprised two main parts: firstly, a study of relevant literature on the subject matter, in order to gain in-depth understanding of the field; and secondly, qualitative data collection, using PhotoVoice. A sample of six participants between the ages of 22-57 years was selected through purposive and convenience sampling. Cameras were distributed to participants and after processing of images narratives were shared around selected photographs and this was later followed by focused group discussions. This analysis process provided two master themes, which are supported by subordinate themes. The master themes are: 1) The challenges associated with the caregiving experience, 2) The positive side of the caregiving experience. Participants experienced a lack of resources, challenges of mobility, the hopelessness of the situation, loneliness of the experience and the financial burden of caring for a child with physical disabilities as challenges associated with the caregiving role. Whereas the joy brought about by support from family, the health service providers and the Association for People with Physical Disabilities personnel; precious moments shared with the child; and personal growth were associated with the positive side of the caregiving experience. These findings support and expand on the growing knowledge of caring for children with physical disabilities. This research culminated in a sharing of the narratives with stakeholders by caregivers themselves as a way of seeking to influence policy, enhance their well-being and engage in a discussion of exploring ways of improving their experience.
- Full Text:
- «
- ‹
- 1
- ›
- »