“Like walking barefoot on the gravel road”: the experience of caring for a child with physical disabilities
- Authors: Ndlovu, Nokanyo
- Date: 2019
- Subjects: PhotoVoice , Photography in the social sciences , Action research , Children with disabilites -- Care -- South Africa , Children with disabilites -- Care -- South Africa -- Case studies , Caregivers -- South Africa -- Case studies , Caregivers -- South Africa
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/72479 , vital:30057
- Description: The aim of this study was to develop an understanding of the experiences of caregivers of children with physical disabilities and to explore ways of improving this experience. Although there is a considerable amount of international research on the experiences of caring for children with disabilities, the focus of the methods of enquiry has mainly been on knowledge production and there is limited research conducted using an approach like participatory action research. Secondly, in South Africa, there is still inadequate information regarding the experiences of caregivers who are from low socio-economic backgrounds. It is for these reasons that the current study, which employed PhotoVoice, a participatory research data collection tool, to explore the lived experiences of caregivers of children with physical disabilities from low socio-economic backgrounds was embarked upon. The research methodology comprised two main parts: firstly, a study of relevant literature on the subject matter, in order to gain in-depth understanding of the field; and secondly, qualitative data collection, using PhotoVoice. A sample of six participants between the ages of 22-57 years was selected through purposive and convenience sampling. Cameras were distributed to participants and after processing of images narratives were shared around selected photographs and this was later followed by focused group discussions. This analysis process provided two master themes, which are supported by subordinate themes. The master themes are: 1) The challenges associated with the caregiving experience, 2) The positive side of the caregiving experience. Participants experienced a lack of resources, challenges of mobility, the hopelessness of the situation, loneliness of the experience and the financial burden of caring for a child with physical disabilities as challenges associated with the caregiving role. Whereas the joy brought about by support from family, the health service providers and the Association for People with Physical Disabilities personnel; precious moments shared with the child; and personal growth were associated with the positive side of the caregiving experience. These findings support and expand on the growing knowledge of caring for children with physical disabilities. This research culminated in a sharing of the narratives with stakeholders by caregivers themselves as a way of seeking to influence policy, enhance their well-being and engage in a discussion of exploring ways of improving their experience.
- Full Text:
- Date Issued: 2019
- Authors: Ndlovu, Nokanyo
- Date: 2019
- Subjects: PhotoVoice , Photography in the social sciences , Action research , Children with disabilites -- Care -- South Africa , Children with disabilites -- Care -- South Africa -- Case studies , Caregivers -- South Africa -- Case studies , Caregivers -- South Africa
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/72479 , vital:30057
- Description: The aim of this study was to develop an understanding of the experiences of caregivers of children with physical disabilities and to explore ways of improving this experience. Although there is a considerable amount of international research on the experiences of caring for children with disabilities, the focus of the methods of enquiry has mainly been on knowledge production and there is limited research conducted using an approach like participatory action research. Secondly, in South Africa, there is still inadequate information regarding the experiences of caregivers who are from low socio-economic backgrounds. It is for these reasons that the current study, which employed PhotoVoice, a participatory research data collection tool, to explore the lived experiences of caregivers of children with physical disabilities from low socio-economic backgrounds was embarked upon. The research methodology comprised two main parts: firstly, a study of relevant literature on the subject matter, in order to gain in-depth understanding of the field; and secondly, qualitative data collection, using PhotoVoice. A sample of six participants between the ages of 22-57 years was selected through purposive and convenience sampling. Cameras were distributed to participants and after processing of images narratives were shared around selected photographs and this was later followed by focused group discussions. This analysis process provided two master themes, which are supported by subordinate themes. The master themes are: 1) The challenges associated with the caregiving experience, 2) The positive side of the caregiving experience. Participants experienced a lack of resources, challenges of mobility, the hopelessness of the situation, loneliness of the experience and the financial burden of caring for a child with physical disabilities as challenges associated with the caregiving role. Whereas the joy brought about by support from family, the health service providers and the Association for People with Physical Disabilities personnel; precious moments shared with the child; and personal growth were associated with the positive side of the caregiving experience. These findings support and expand on the growing knowledge of caring for children with physical disabilities. This research culminated in a sharing of the narratives with stakeholders by caregivers themselves as a way of seeking to influence policy, enhance their well-being and engage in a discussion of exploring ways of improving their experience.
- Full Text:
- Date Issued: 2019
“New ways of telling”: African textual forms and dissemination in the age of digital media
- Authors: Friedemann, Oriole Megan
- Date: 2019
- Subjects: Digital media -- Africa , Self-publishing -- Africa , African literature , Literature publishing -- Technological innovations , Blog authorship -- Africa , African Storybook Reader , FunDza Literacy Project , Long Story SHORT
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/115105 , vital:34078
- Description: In the age of digital media, creators are using the versatile nature of information and communication technologies and the ubiquity of the web to publish and distribute texts, circumventing traditional gatekeepers such as publishing institutions. In Africa, where web access and digitisation are relatively new, storytellers are eagerly exploring new mediums and the possibilities that they provide for African narratives and African representation. This thesis looks at the digital platforms of the African Storybook Reader, the FunDza Literacy Project, and Long Story SHORT, as well as Dudu Busani-Dube’s novel Hlomu the Wife, which first gained popularity on a blog platform. It examines three different web series, An African City, The Foxy Five, and Tuko Macho, as well as a transmedia documentary, Love Radio. The texts are grouped into literatures disseminated from digital platforms, localised narratives that explore the urban African woman, and narratives that make use of participatory culture. These are texts that make use of digital tools and platforms to create and disseminate African stories, making diverse and indigenous narratives more easily accessible to both local and global audiences. This thesis argues that digitisation and the global nature of the internet have created opportunities for Africans to become producers and exporters of indigenous information and representation, rather than passive consumers of imported knowledge, or subjects of external characterisation.
- Full Text:
- Date Issued: 2019
- Authors: Friedemann, Oriole Megan
- Date: 2019
- Subjects: Digital media -- Africa , Self-publishing -- Africa , African literature , Literature publishing -- Technological innovations , Blog authorship -- Africa , African Storybook Reader , FunDza Literacy Project , Long Story SHORT
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/115105 , vital:34078
- Description: In the age of digital media, creators are using the versatile nature of information and communication technologies and the ubiquity of the web to publish and distribute texts, circumventing traditional gatekeepers such as publishing institutions. In Africa, where web access and digitisation are relatively new, storytellers are eagerly exploring new mediums and the possibilities that they provide for African narratives and African representation. This thesis looks at the digital platforms of the African Storybook Reader, the FunDza Literacy Project, and Long Story SHORT, as well as Dudu Busani-Dube’s novel Hlomu the Wife, which first gained popularity on a blog platform. It examines three different web series, An African City, The Foxy Five, and Tuko Macho, as well as a transmedia documentary, Love Radio. The texts are grouped into literatures disseminated from digital platforms, localised narratives that explore the urban African woman, and narratives that make use of participatory culture. These are texts that make use of digital tools and platforms to create and disseminate African stories, making diverse and indigenous narratives more easily accessible to both local and global audiences. This thesis argues that digitisation and the global nature of the internet have created opportunities for Africans to become producers and exporters of indigenous information and representation, rather than passive consumers of imported knowledge, or subjects of external characterisation.
- Full Text:
- Date Issued: 2019