The experiences of health service providers working with children with physical disabilities and their caregivers in the Eastern Cape
- Authors: Mathaba, Yollandah
- Date: 2019
- Subjects: Children with disabilities -- South Africa -- Eastern Cape , Caregivers -- South Africa -- Eastern Cape -- Case studies , Caregivers -- Psychology , Children with disabilities -- Care
- Language: English
- Type: text , Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10962/76299 , vital:30545
- Description: The prevalence of childhood disability in South Africa is significant. In an attempt to meet the constitutional rights of children with disabilities, there are a variety of services available for children with disabilities. These services are aimed at rehabilitating children with disabilities and integrating them in society. Amongst such services are health services. Due to the nature of some childhood disabilities, it is recommended that they should be seen by a multidisciplinary team. While the field of childhood disability has been researched extensively. Limited research has been conducted on the experiences of health service providers working with children with disabilities and their caregivers. The current study explored the experiences of health service providers working with children with disabilities and their caregivers in the Eastern Cape. To achieve this aim, the study employed Interpretative Phenomenological Analysis (IPA). Five participants were recruited using purposive and snowball sampling methods. Semi-structured interviews were used to allow participants to freely share their experiences of working with children with disabilities and their caregivers. The interviews were audio recorded and transcribed for analysis purpose. The analysis process generated five master themes namely: Positive experiences of their work; negative experiences of their work; perception of their role as changing over time; managing challenges in their work; and experiences of a service learning programme as complementary to their work. The findings of the study highlighted both the positive experiences and the negative experiences of their work. On the one hand, the participants reported positive affect and that they found their work meaningful. They also reported a sense of feeling supported by fellow colleagues and enjoying their work at the clinics. On the other hand, the participants reported negative affect in relation to their wok difficulties such as feelings of frustration, feelings of being unappreciated by management and finding the work distressing. The participants reported that professional and emotional growth in conjunction with perspective taking contributed to developing better coping mechanisms. A service learning programme offered in the community was experienced as a good contribution to the work done at the clinics and distinguished as addressing the emotional needs of the caregivers which cannot be addressed at the clinics. The findings of the study supports and expands the literature on the experiences of health service providers working with children with disabilities in South Africa.
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- Date Issued: 2019
Stress, resiliency and coping of hostel housemothers caring for children on the autistic spectrum
- Authors: Thiart, Sarita
- Date: 2018
- Subjects: Autism spectrum disorders -- Patients -- Home care , Caregivers -- Psychology
- Language: English
- Type: Thesis , Masters , MA
- Identifier: http://hdl.handle.net/10948/23272 , vital:30510
- Description: Autism is a life-long neurological disease that manifests differently in every autistic person. Children with autism have difficulties with four developmental areas, namely: language and communication, social interaction, imagination, and sensory issues. These behaviours make it extremely difficult to care for, or teach, autistic children as these children often present with behaviours that are psychologically, cognitively and physically challenging. As there is only one government subsidised school with the expertise and support structures to teach and care for autistic children in the Eastern Cape, parents often have no option, but to place such children in residential care in order for the children to receive the expert teaching they need. As a result, hostel housemothers are often placed in parental roles as they provide much of the parenting on a daily basis. Many of these caregivers have their own families that also need support and care. This may place additional burdens on these employees that could lead to a variety of psychological and physical conditions, depending on their resilience, and ability to handle frequent stressful situations. It is for this reason that this study is imperative, as it will uncover the stressors experienced by the hostel housemothers who play such a pivotal role in the lives of autistic children. The results of the study will serve to inform possible future interventions. This is a qualitative study. Participants were obtained through purposive sampling, and data was analysed through a thematic analysis approach. The Salutogenesis theory of Antonovsky was used, which particularly looks at stressors, tension, breakdown, and Salutogenesis. The study has generated, in the researcher, an understanding of how hostel housemothers cope with the stressors of caring for autistic children, and intends to do the same for readers.
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- Date Issued: 2018
The experiences, challenges, motivations and coping strategies of informal caregivers in a Grahamstown township
- Authors: Ntshobane, Zephania Zingqi Zongamele
- Date: 2014
- Subjects: Caregivers -- South Africa -- Grahamstown , Caregivers -- Psychology , Volunteers -- South Africa -- Grahamstown , Voluntarism -- Psychological aspects , Adjustment (Psychology)
- Language: English
- Type: Thesis , Masters , MA
- Identifier: vital:3236 , http://hdl.handle.net/10962/d1013171
- Description: The health care system in South Africa is currently under strain and it does not cater for everyone's needs. This has left a gap in society whereby you will find that the poor citizens of the country are not being catered for in terms of getting access to adequate healthcare. With this existing gap, there are Non-Governmental Organizations (NGOs) in some of the poor communities in the country. These NGOs have volunteer caregivers who go around the community and taking care of the sick people. Research has often ignored these volunteer caregivers, this current research study investigated the experiences of these volunteer caregivers. The goals of the research study were to investigate the experiences of the caregiver, the motivations of the caregivers and the challenges that they encounter and how they cope with the challenges that arise while performing their caregiving duties. The study was based on the phenomenological paradigm. This paradigm believes that the subjective experience of the individual is an essential source of information. In-depth interviews were conducted with the four participants who took part in the study. An interview guide was utilised to help guide the interview process. Interpretive Phenomenological Analysis (IPA) was used in analysing the data. IPA is a way of analysing data, which investigates how a person, in a given setting understands an experience. The findings showed that the caregivers had both negative and positive experiences. They experienced the care recipients as being appreciative of them. However, they experienced the family members of the care recipients as being uncaring; financial constraints were also a negative experience. Several challenges were stated by the participants, including a lack of government support, alcohol abuse by the care recipients and challenging working conditions. The participants were motivated to volunteer as caregivers by a number of things. Altruistic motivation was the first, which included the love for the community and the poverty in the community. Reciprocity was another motivating factor, as well as religious duty and career advancement. In this research study there was one coping strategy that came out; the participants stated that they seek advice and consult with someone or go for supervision within the organization when they are faced with a difficult situation. The findings in the research study were similar to those found in previous research. One notably different finding was that in previous research, the caregivers have been found to abuse alcohol in order to cope with stress. However, in this research study, the care recipients are the ones who are abusing alcohol. The research recommends that the government assists the informal caregivers, either financially or with infrastructure.
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- Date Issued: 2014